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出版社周刊评论
In 1984, at the age of six, Jason Gaes was diagnosed with Burkett's lymphoma, one of the fastest-spreading and most aggressive cancers of the lymphatic system. According to this book, there were 1600 pediatric cancer deaths in 1990: Jason is one of the survivors. The Gaeses, with coauthor Bashe, here chronicle their family's struggle. This is a powerful account of the roller-coaster ride a family takes when trying to overcome the odds of a life-threatening disease. If a child was diagnosed with cancer in the mid-1960s, he or she had a one-in-five chance of survival; today, more than two in three survive. The authors explain how to tell your child that he or she has cancer, ways to discuss death and dying with the young, and what support from family and friends will make the ordeal more bearable. They advise parents to become active partners in their offspring's treatment. They decode the long battery of tests needed for correct diagnosis and the types of cancer that occur most frequently in children. They offer suggestions on what chemotherapy or radiation treatments may be used (and their possible side effects), and on how to coax an exhausted and nauseous youngster to eat. But perhaps most important, in the midst of all the advice, is the Gaeses' message of hope in the face of potential tragedy. (July) (c) Copyright PWxyz, LLC. All rights reserved
Kirkus评论
Straightforward advice from parents-who-have-been-there on how to cope with childhood cancer. The Gaeses are parents of Jason, author of My Book for Kids with Cansur, written when the youngster, stricken at age six with lymphatic cancer, was recovering from the disease. Although details of the Gaeses' own story are included here, this is not simply another account of how one family dealt with cancer but, rather, a well-constructed guidebook, packed with practical advice for parents facing a similar ordeal. The Gaeses--writing with the assistance of Bashe (coauthor, That's Not All Folks!, 1988)--have covered just about every conceivable aspect of the situation. They draw on their own experience, mistakes and all, and supplement that with information gleaned from a variety of knowledgeable sources. Among the topics discussed are telling the child about his disease; talking about death; dealing with siblings, other family members, and doctors; handling insurance and financial aid; taking care of the child after the hospital phase is over; and working with the discipline and the school problems of the recovering child. The authors also provide data on types of childhood cancer and note appropriate sources for further information. Their checklists of potential side-effects of treatments are designed to reassure the anxious parent, and their dietary recommendations are clear and concise. There are guidelines for evaluating unproven and unconventional cancer- control treatments.. A confidence-inspiring sourcebook for stricken families.
《图书馆杂志》(Library Journal )书评
This intensely personal (and very readable) account of Jason Gaes's five-year battle with Burkitt's lymphoma, which was also the subject of an Academy Award-winning documentary, includes a great deal of practical information for families in similar situations. The Gaeses offer advice on selecting medical facilities, helping the child during treatment, discussing death and dying, and finding the right support group. The charts on the side effects of various kinds of drugs and the chapter on the different kinds of pediatric cancer present difficult information in a clear and understandable manner. Footnotes and an index would have been helpful, but the glossary is useful. This book complements Mark Chesler and Oscar Barbarin's Childhood Cancer and the Family: Meeting The Challenge of Stress and Support (Brunner/Mazel, 1987). Recommended for patient education/consumer health collections.--Mary Jarvis, Methodist Hosp . Medical Lib., Lubbock, Tex. (c) Copyright 2010. Library Journals LLC, a wholly owned subsidiary of Media Source, Inc. No redistribution permitted.