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Résumé
Approximately 20,000 new cases of childhood cancer are diagnosed each year. Until now, the families who receive this devastating news have had no one volume to turn to for up-to-date information, clear answers, and authoritative resource recommendations. To meet this need, clinicians and scientists at the world-famous St. Jude Children's Research Hospital have compiled the most comprehensive and compassionate family reference available. From practical matters, such as what tests to expect during diagnosis, treatment options for each kind of cancer, and the value and availability of clinical trials, to the emotional needs of children battling cancer and coping with life afterward, this invaluable guide will offer immeasurable comfort to parents and patients facing the family crisis of childhood cancer.Founded in 1962 by the late entertainer Danny Thomas, St. Jude Children's Research Hospital in Memphis, Tennessee, has treated more than 15,000 children from across the United Statesand more than sixty foreign countries. It is the first institution established for the sole purpose of conducting basic and clinical research into catastrophic childhood diseases, and is the largest childhood cancer research center in the United States.
Critiques (3)
Critique de Booklist
The 50 chapters of this handbook deal clearly and thoroughly with many aspects of childhood cancer. Their authors point out the differences between cancer in children and in adults and emphasize the major, often remarkable improvements in diagnosis, treatment, and survival rate during the past few decades. Chapters describing types of cancer, tests, equipment, and techniques are interspersed with chapters on such topics as what to ask the doctor, management of pain, psychosocial and spiritual support, and insurance matters. Designed so that the reader can learn, first, about general medical and surgical topics and then about specific types of cancer, as needed, the book frowns upon alternative therapies but does consider complementary medicine approaches. Many tables aid in organizing material and reinforcing a vast amount of information. The book concludes by listing sources of additional information and support; a glossary would have been another nice addition. --William Beatty
Critique de Choice
Sixty professional staff members assembled this compilation of information on pediatric cancer. Ostensibly written for "anyone" close to a child diagnosed with cancer, it contains some chapters written in such technical language that even the most determined parents may become discouraged. Almost all patients at St. Jude are enrolled in clinical trials. It is paramount that parents understand safeguards for human subjects and research protocols. Parents will also benefit from chapters on alternative and complementary therapies, as well as reliable Web sites and chat rooms. Chapters of middle-range technicality cover diagnoses, treatments, care, and possible aftermath of treatments. Most technical are chapters on specific types of cancers. Helpful for both parents and clinicians are chapters on treatment side effects, infection control, nutrition, pain reduction, and follow-up care. The chapters clearly written for parents and patients cover survivors' quality of life issues, coping, grief, and social adjustment. Important practical concerns including health insurance, educational services, and civil rights under US statutes are also addressed. Judicious regrouping of chapters or division of the material into two books might improve the usefulness of this welcome but prodigious effort. All levels. M. K. Snooks; University of Houston--Clear Lake
Critique du Library Journal
Making informed medical decisions for a child with cancer is difficult, but this textDa cutting-edge textbook on pediatric cancer written expressly for lay readers by St. Jude's clinicians and scientistsDprovides compassionate advice and information that should help ease the process. (Founded in 1962 by entertainer Danny Thomas, St. Jude Children's Research Hospital is today recognized as a leader in children's diseases and, specifically, in children's cancer.) This one-volume resource is outstanding in every wayDorganization, content, authority, scope, and special features. Organized around seven broad sections for the comprehensive coverage of key issues (basics, diagnosis, treatment, patient care, cancer types, and recovery), the 56 chapters are each authored by a specialist in the field. The writing is intelligent and clear but never patronizing. Information on hard-to-find topics such as the late effects of cancer treatments (e.g., adverse effects that may show up years later) and an excellent introduction to the genetics of cancer is included. A first-rate list of information resources as well as a chapter on how to find reliable web-based information (authored by a medical librarian) are added bonuses. An exceptional contribution to cancer patient information, this is essential for all consumer health collections.DGail Hendler, Memorial Sloan-Kettering Cancer Ctr., New York (c) Copyright 2010. Library Journals LLC, a wholly owned subsidiary of Media Source, Inc. No redistribution permitted.
Table des matières
| Contributors | p. vii |
| Preface | p. xiii |
| Acknowledgments | p. xv |
| Part 1 Overview of Childhood Cancer | p. 1 |
| 1 What is Cancer? | p. 3 |
| 2 How Common is Childhood Cancer? | p. 11 |
| 3 A Historical Perspective on Childhood Cancer | p. 19 |
| 4 The Biology of Childhood Cancer | p. 35 |
| The Genetics of Childhood Cancer | p. 47 |
| Part 2 How Cancer is Diagnosed | p. 59 |
| 6 The Patient History and Physical Examination | p. 61 |
| 7 Laboratory Tests | p. 71 |
| 8 Diagnostic Imaging | p. 79 |
| 9 Tumor Biopsy | p. 91 |
| 10 Tumor Pathology | p. 95 |
| 11 What to Ask Your Doctor | p. 103 |
| Part 3 How Cancer is Treated | p. 109 |
| 12 Treatment Options | p. 111 |
| 13 Surgery | p. 119 |
| 14 Radiation Therapy | p. 127 |
| 15 Chemotherapy | p. 141 |
| 16 Bone Marrow Transplantation | p. 155 |
| 17 Immune Therapy | p. 167 |
| 18 Medical Research in Children | p. 175 |
| 19 The Importance of Clinical Trials | p. 183 |
| 20 Alternative and Complementary Therapies | p. 195 |
| 21 Future Directions in Cancer Treatment | p. 205 |
| Part 4 How the Patient is Cared For | p. 213 |
| 22 Patient Care from the Patient's Perspective | p. 215 |
| 23 Managing Early Treatment Side Effects | p. 221 |
| 24 Reducing Pain | p. 229 |
| 25 Nutrition for the Cancer Patient | p. 243 |
| 26 Controlling Opportunistic Infections | p. 255 |
| 27 Blood and Plasma Transfusions | p. 263 |
| 28 Psychosocial Support for the Child with Cancer | p. 271 |
| 29 Spiritual Support for Children and Families | p. 283 |
| 30 Coping with Tumor Recurrence | p. 293 |
| 31 When Cancer is Terminal | p. 305 |
| Part 5 The Leukemias and Lymphomas | p. 311 |
| 32 Acute Lymphoblastic Leukemia | p. 313 |
| 33 Acute Myelogenous Leukemia | p. 327 |
| 34 Hodgkin's Disease | p. 337 |
| 35 Non-Hodgkin's Lymphoma | p. 345 |
| Part 6 The Solid Tumors | p. 353 |
| 36 Retinoblastoma | p. 355 |
| 37 Brain Tumors | p. 363 |
| 38 The Ewing's Sarcoma Family of Tumors | p. 383 |
| 39 Wilms Tumor | p. 391 |
| 40 Neuroblastoma | p. 401 |
| 41 Liver Cancer | p. 409 |
| 42 Osteosarcoma | p. 415 |
| 43 Rhabdomyosarcoma | p. 425 |
| 44 The Infrequent Childhood Cancers | p. 433 |
| Part 7 Recovery from Cancer | p. 445 |
| 45 The Physicalm Aftermath of Cancer | p. 447 |
| 46 The Psychosocial Impact of Cancer | p. 461 |
| 47 Social Concerns of Children with Cancer | p. 471 |
| 48 Educational Concerns for Children with Cancer | p. 477 |
| 49 Late Effects of Cancer Therapy | p. 491 |
| 50 Long-Term Follow-Up After Childhood Cancer | p. 505 |
| 51 Reducing Exposure to Cancer Risk Factors | p. 517 |
| 53 Insurance and Financial Issues Associated with Cancer | p. 550 |
| 54 Grieving and Emotional Recovery | p. 551 |
| 55 Locating and Evaluating Medical Information on the World Wide Web | p. 561 |
| 56 Afterwords: an Epilogue | p. 569 |
| Appendix 1 Web Sites for Medical Information | p. 575 |
| Appendix 2 Educational and Support Resources for Cancer Patients and Their Parents | p. 579 |
| Notes and Sources | p. 581 |
| Index | p. 595 |